Cleft Links

Note: The material on these sites are not necessarily the views of or endorsed by Charleston Clefts, Inc.

AboutFace International - AboutFace USA - International organization providing emotional support and information to people with facial differences and their families.

About Smiles - Pediatric dentist's website helping all parents understand their children's dental and oral health needs

apert.org - An online support and information source for individuals and families affected by Apert Syndrome

Association of Birth Defect Children - Organization providing information to parents and professionals about all kinds of birth defects, resources, support groups, and environmental exposures

Craniosynostosis and Positional Plagiocephaly Support, Inc. - Online support group for parents of children with craniosynostosis and positional plagiocephaly

Exceptional Parent - Website and magazine about parenting a child or young adult with a disability or special health care need

Families USA - National, nonprofit, non-partisan organization dedicated to achieving high-quality, affordable health care for all Americans. Find out about current legislation affecting you!

Family Voices - National coalition of families and professionals advocating for children with special needs. See their network of state coordinators and publications on insurance advocacy

Friendly Faces- A network and clearinghouse of resources for individuals with facial differences, their parents, families, and friends

Let's Face it - Nonprofit network for people with facial difference and their families, friends, and professionals. See their comprehensive index of organizations and resources

March of Dimes - Organization dedicated to "improving the health of babies by preventing birth defects and infant morality" through research, community services, education and advocacy. It also provides individual genetic counseling to callers

National Organization for Rare Disorders (NORD)- Federation of organizations serving people with rare disorders and disabilities. Reports on hundreds of conditions are available

Pierre Robin Network - Network of families whose children have been diagnosed with Pierre Robin Sequence/Syndrome

WideSmiles - Website providing support, inspiration, information, and networking for families everywhere who are dealing with the challenges associated with cleft lip and palate.

Cleft Advocate - a great website by Deb, a parent of a cleft affected teen. A good source for information about general cleft treatment, and your insurance rights. Also features a email list/message board

The Cleft Club - an emailing group moderated by Calvero, aka Kim, a cleft affected adult. This is a very large group that has grown quite a bit since it was founded in 1999. In addition to a main group where everyone can post, it has several sub-groups for parents of cleft affected children, cleft affected adults, and cleft affected teens (which is also connected to TeenSmiles, listed below)

SnuggleWraps - A site created by Heather Able for parents of Cleft affected children, promoting her product SnuggleWraps, a post-surgical restraint.

Do you have a link that can be added here? Email the webmaster at sblack@charlestonclefts.org


Scott's Other Websites

Here are some other websites that Scott has authored:

Charleston School of the Arts High School Bands

His Road Productions

Scott's Personal Webpage